This website was set up primarily to goad, urge, chivvy and generally encourage people who have been paralysed or severely disabled by stroke and locked-in syndrome, along with their families, doctors, nurses and carers. So whenever I come across a positive experience from fellow sufferers like this one, I intend to broadcast it as widely as possible!
Christine (who is now in her 40s) became locked-in 17 years ago and spent most of that time lying helplessly, making no effort to move. Then 2 years ago she began trying to sit forward in her wheelchair, pushing herself forward over and over again. At first, nothing happened, but she kept on trying on a daily basis, constantly pushing her body to make herself sit upright.
Still nothing. Then, months later, something began to happen – she noticed a little movement which restored her hopes and made her push forward even more.
Today, Christine is standing on her feet and is able to ride a bike!
So the message is clear. NEVER STOP TRYING! The connections may be there now or later but you won’t know unless you keep trying!
Picture this: Say, you’re trying and the muscle could be twitching but you can’t see it coz it’s smaller than a pea. You have to build that pea up until one day it’s strong enough to move that limb or finger or whatever.
I told Christine to try moving a part of her body for half an hour a day, every day for a month or two, timing her efforts to music or something that would help her concentrate. Several months later and she sent me a video of her thumb – it was moving after 15 years!
Now I can’t promise it will work for everyone but it’s certainly worth a try!
If you want to contact Christine and find out more, please visit her at: https://www.facebook.com/DiaryOfAFighter